Information Resources
• Newsletters and medical updates
• Literature, pamphlets and brochures
• Free library of books, cassettes, tapes and other resources
• Directory of state and community services
• Directory of treatment centers nationwide
PALS (Patient Advocacy Learning & Services)
• Patient Advocacy Learning and Services (PALS) - a local support group and network for families livings with bleeding disorders and associated complications.
• Regional education and networking programs
• Mentor program for parents of newly diagnosed persons with a bleeding disorder
Direct Patient Services
• Scholarships to help defray the cost of higher education
• Teen Retreat and Summer Camp for children
• Medic Alert IDs provided to patients
• Limited financial assistance evaluated on a case-by-case basis
• Transportation, meals and lodging for HTC visits
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Education
• Community Health Fairs
• Annual Meeting and educational symposiums
• Educational seminars
Coordination & Collaboration
• Coordination of efforts with the State Hemophilia Program, Louisiana Comprehensive Hemophilia Care Center, and other health care agencies to provide unified service and reduce costly overlaps and duplication of services
• Fundraising for support of local and national research program services and Foundation activities.
• Recruitment and training of volunteers to participate in education, programming and fundraising.
• Foundation representation at National Hemophilia
• Foundation meetings, symposiums, seminars and workshops
If you are looking for a particular service and do not see it listed, please do not hesitate in contacting us directly.
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